Recently, I met a woman whose son died in a tragic car accident. One minute he was alive with plans for a wonderful future. The next minute, he was lying in a coffin. A terrible event with intense grief.
For families with loved ones who suffer from Alzheimer’s, the grief comes in small steps. We know the end of the story and while we don’t have any idea what day our loved one will graduate to heaven – we do know the end will come.
But the grief may not be as intense, all at one time, as it was for the mother I met.
Alzheimer’s grief comes and goes with each regression into the disease. This is one reason why it is called, “The Long Good-bye.”
With my mom, the most intense grief happened at the initial diagnosis. Because our family lived through Dad’s dementia, we had an idea of what we faced with Mom. Once that MRI came back with its definitive image, we faced the truth about Mom’s future.
My first grief reaction was actually anger. How unfair that my mother should have to be sentenced to this horrible disease. Then came the sadness, a piece at a time: when she could no longer find her pots and pans in the kitchen, when she forgot to eat, when we had to make the decision to put her into assisted living.
I know what some of the next steps of grief will be: when Mom forgets who I am, when she crosses that line of communication where she no longer speaks, when we have to move her into the nursing home area of the building.
As horrible as it sounds, for caregivers that final grief is actually a release. When our loved one finally graduates to heaven and we know their minds are suddenly clear, we’re happy for them. Our day-to-day sadness turns to joy because we know the sounds of the long good-bye have finally been silenced.
Grief is difficult, no matter how it happens – whether in an intense moment or in bit and pieces. None of us grieves in the same way and no one can tell us how to do it well. We have to find our way through that tunnel alone.
But one thing we do know – all of us at one time or another will grieve. We will feel the emotions of loss whether it’s from death, unemployment or the end of a dream.
The trick is to somehow find hope in the midst of that unraveling of emotions and be grateful for the life our loved ones have lived.
Grief means we have experienced love and whether it comes all at once or in small steps – abiding in love restores hope.
©2013 RJ Thesman – “The Unraveling of Reverend G” – http://amzn.to/11QATC1
Very good Rebecca. This one is your best yet. Very informative and encouraging
Thanks, Tom. I know that you understand.
Better to have loved and then see grief, than never to have loved. Thanks for the encouragement.
You’re so right, Angela. Thanks!
I found this incredibly moving. Especially as my Dad has early stages of alzheimers.
Bless your heart, Libby. It’s quite the journey isn’t it? All we can do is continue to love them and appreciate every day that they recognize us. If you’d like, I have a group on Facebook titled “Sometimes They Forget” . Ask to be invited in and I’ll do that. We try to encourage each other with tips and hope.