How to Find a Legacy Within Alzheimer’s

Because October is my birthday month, my thoughts often center around the woman who birthed and raised me. Although Dad was a prominent faith figure in my growing up years, it was Mom who pushed me out of the birth canal and then pushed me to become who I am.Arlene Renken - nurse

She was a fighter and an extrovert, unlike the rest of us who liked to disappear within our private worlds to write, listen to music or find our energy in the beautiful solitude of the Oklahoma landscape.

Odd that I speak of Mom in the past tense, even though her brave heart still beats as she stares at the wall opposite her chair. That’s what Alzheimer’s does to a family. We say goodbye, one stage at a time, one regression after another so that when death finally releases our loved one – much of the grieving has already been done. “The Long Goodbye” is aptly titled.

Mom grew up poor, walked to high school (yes, miles away, even in the snow and rain) and wore the same two dresses until her Sunday dress became too worn for church. It was then relegated for school wear as her mother sewed a better one for the Sabbath or one of the cousins passed down a Sunday outfit that wasn’t yet worn out.

As part of her legacy, Mom was determined none of her children would ever be ashamed of their clothes or feel embarrassed because they didn’t fit in. So she learned how to sew, spread out the material on the farmhouse floor, cut, pinned and put together whatever clothes we needed to look like we had some cash in the bank.

Then she made certain that each of us understood the importance of a quality education so that we would never feel the sting of poverty. We grew up with a solid work ethic, attended college, saved our pennies and never bought anything we didn’t really need.


It was a simpler time – a beautiful segment of history, without traffic snarls, school shootings or adultery in every family tree. I miss it every day.


Mom was willing to live in an old farmhouse and fix it up gradually, learning how to wallpaper and restore old pieces of furniture. Much of our house looked like the early-attic variety, but none of us minded. It was a safe place to grow up although cold in the winter and hot in the summer. But who minded when the kitchen smelled like fresh-baked bread, the fields sprouted a golden harvest that supported us all year and the animals taught us about life and death.

As a registered nurse, Mom followed the habits of “old school” nursing. Always dressed in white, her uniform and hat starched and gleaming, her white shoes and hose the perfect accessory. In those days, no jewelry was allowed except a simple wedding band.

But Mom, always a bit of a radical, wore a cross necklace under her slip. “To remind me I’m working as a Christian,” she said. “To keep me focused on what matters when I have to clean someone’s bottom or tell a family their child just died.”

Strength of character. Rock solid faith. Those qualities are hard to imagine in the woman who now rocks back and forth and accuses strangers of stealing her digital clock.

Yet it was those very qualities that taught me how to work well even when no one is watching, how to pray my guts out, how to deal with life when it hurts by working hard and moving forward, how to fight against traditions that are based only on men’s interpretations rather than the powerful voice of God.

Even now, as I have journeyed through a faith crisis and wondered how to find a church that will accept my calling – I know Mom would understand. If I could just communicate with her, she would get that steely gleam in her eye and tell me to “Stop whining. Just get busy and do it.”

She was probably one of the first parents who envisioned the concept of giving your children roots and wings. She taught us well, then let us go and cheered us whether we succeeded or learned hard life lessons through failure.

Never demonstrative with her love, if anyone attacked her kids – they would face the wrath of a woman who knew how to struggle through the worst of life’s catastrophes and conquer them through sheer determination and grit.

No one dare beat up her kids, either emotionally or physically. She would stand tall in her 5’8” frame and declare, “One more word, and I’ll jerk a knot in you.”

So I am proud of the legacy Mom has shared with me, a strength of character that dares to question the establishment yet humbly accepts God’s will.

Even in the shadows of Alzheimer’s, I see Mom’s resolve to finish her course well, to find contentment in the every dayness of Bingo, planned meals and assigned seats during movie night.

The strong woman who raised me still exists somewhere deep within, even though the outer shell gains fragility, age spots and graying hairs.

The legacy continues. Thanks, Mom.

©2015 RJ Thesman – Author of the Reverend G Books http://www.crossrivermedia.com/portfolio/1624/gallery/fiction/

Stage 6 of Alzheimer’s – Back to Childhood

As told by Reverend G …

My mother came to visit me last night, and we made sugar cookies together. Then this morning, she was gone and Chris told me it was a dream.

I think he is wrong. It was too real to be a dream.

Psalm 56-3-4When I was a child, I thought like a child. Now that I am an adult with Alzheimer’s, I still think like a child. I would give anything to start my life over and be a child again – a real child – not this fake, pretend sometimes-adult-sometimes-child personhood.

Chris brushes my hair and tries to braid it, because I have forgotten how to weave the strands in and out, up and under.

My mother does the best job with my hair and tonight, I will ask her to fix it for me.

When I was a child, just yesterday I think, I wanted to stand in front of people and tell them about God. I’m not sure if I ever did that, but that boy, my son – he said I used to preach.

I hope I did it well as I cannot remember any subjects I might have preached about.

The only thing I do remember is what I am reading now in my Bible. It is from a book with a funny name, Psalms. The numbers are 56:3 and 4, “When I am afraid, I will put my confidence in you. Yes, I will trust the promises of God. And since I am trusting him, what can mere man do to me?”

The nurses do funny things to me as they bathe me and try to coax me to eat. I don’t like those little brown cookies with vanilla pudding on top. Too mushy. I like little blue rocks…some kind of berries…on top of Chunky Monkey ice cream.

But no matter what they feed me, somewhere inside me is the God I trust. And since the Bible says I don’t have to be afraid … then that’s what I will hang on to.

Even when I cannot brush my own hair, I will keep my confidence in the God I can trust. He will not let me down.

©2015 RJ Thesman – Author of the Reverend G Books – http://bit.ly/1RH27AT

Stage 4 of Alzheimer’s – Diagnosis

As told by Reverend G …

So Doc Sanders tells me I have dementia and early-onset Alzheimer’s. The prognosis includes a gradual regression into childhood and someday, somebody will have to take care of my basic needs because I won’t be able to.Psalm 43-5

Well, God … this is not a happy thought. I’m just being honest and telling you that I can’t stand this.

How in the world can I continue to serve you and be your light that shines in dark places, that helps people see the love of God – if I can’t even take care of myself.

This is really a terrible situation. I can’t stand it.

My son doesn’t understand and he’s angry about it. I have to resign from my pastorate, sell all my earthly goods and go live in assisted living.

Again … I don’t understand why this has happened. None of my ancestors suffered from Alzheimer’s – at least I can’t remember if they did. Oh, I made a joke. Ha!

I can still remember my mother’s face and the little house where I grew up, but I can’t remember what I had for lunch today or yesterday or the day before.

That is common, Doc says. I will forget today and remember far into yesterday – for a while. Someday I will forget even the most basic of survival skills such as: how to eat, how to swallow, how to tie my shoes.


Somewhere in all of this, God, there must be a lesson. Somewhere in all of your plan, I know there is a spectrum of light, a chrysalis that will someday burst into goodness.


I cannot see it, but you can. Oh, God, my God, help me.

Another of your servants, King David, felt discouraged as well. He fashioned a formula for himself and the rest of us when he wrote, “Hope in God for I will yet praise him” (Psalm 43:5).

The Yet Factor. I will yet find something to praise you about in all of this mess. I will yet find a way to seek hope and reach for the light when I don’t understand. I will live in the yet because that is where faith resides.

And even though this diagnosis is not what I wanted to hear, it is no surprise to you, God. You are faithful. You will be with me throughout this journey, and I will yet praise you.

©2015 RJ Thesman – Author of the Reverend G Books – http://bit.ly/1RH27AT

Excerpt from “Intermission for Reverend G”

Intermission Rev G Cover“I’d like to see your mother gain a little weight. She’s a bit below the charts.” Jacob sat beside me in one of the chairs in Doc’s old office while the new doctor in town flipped through my chart and made a notation.

I watched him scribble whatever orders or medicines he thought might improve my health. His gorgeous dark skin contrasted totally with his white lab coat. Perfect spoken English, obviously from India.

I glanced at his certificate on the wall, framed in dark mahogany; “On the recommendation of the faculty of the Harvard School of Medicine, the trustees have conferred on Kumar Anjee the degree of Doctor of Medicine.”

Jacob crossed his legs and reached for my hand. “Doctor Anjee, my mother eats a healthy diet and exercises regularly. She walks every day. We were wondering if perhaps any new drugs or supplements might help with the memory loss.”

Doctor Anjee closed my chart and leaned forward to address Jacob. “That is good. Walking is the best possible exercise, but of course you know – all indications are that the brain continues to wither, especially the temporal lobes.”

Wither. What a disgusting word! Old withering Reverend G. Withering like a rotten tomato on the vine, left too long in the Kansas sun. Withering brain cells drying up and disappearing into the sunset of life. Withering old lady with dried up temporal lobes.

I can’t stand it, God. I’m withering like a plum that morphs into a prune. Is there a Bible verse that talks about withering? How am I supposed to deal with this? How am I supposed to age gracefully if I’m withering? And why won’t this doctor look at me? Doc Sanders never treated me like this.

The doctor continued, “You also might begin to notice another type of regression, almost a personality shift. Your mother may exhibit more of the behavioral characteristics of an adolescent; such as arguing, becoming more interested in childish things, maybe even a desire for toys.”

Great! Not only was my brain withering but I also lived in a time warp. What happens next? Zits?

My stomach growled, and Doctor Anjee glanced at me. Must have heard the rumbling. He made another notation in my chart. Probably something like “Withering old lady has a loud stomach especially when sitting in office chair.”

“Can you tell me your name and your birth date?” he asked without looking up.

“Yes.” Idiot man. Of course I could tell him my name and my birth date. I just chose not to.

Jacob laughed. “Well, sir, she did answer your question.”

Not even a snicker from the doctor. He made a checkmark on my chart then asked, “What day is this?”

I was ready for this one. I practiced it all morning, because I knew the doctor always asked that question. “It’s the day after yesterday and the day before tomorrow.” So there, big shot doctor who never looks at his withering patients.

©2014 RJ Thesman – “Intermission for Reverend G” – http://amzn.to/1l4oGoo